I promised to keep everybody informed as Leslie and I begin this journey of chemotherapy. I just thought I would be writing something different.
At this point we expected Leslie would have breezed through the first two infusions of chemotherapy. However, the side effects from the first infusion hit like a speeding train. We anticipated nausea and vomiting, but it was minor. We anticipated exhaustion and loss of feeling in the fingertips, and those came as expected. We anticipated hair loss, and that is continuing.
What we didn’t expect was diarrhea so bad it caused extreme dehydration. Just a few days after the infusion, Leslie was taken to the Cleveland Clinic Emergency Department with dehydration and extremely low blood pressure. Doctors admitted her to the hospital where she stayed six days and came home weak and unable to walk more than a few steps — about what you would expect after being in a hospital bed for almost a week.
Back in our temporary quarters, she seemed to be improving. But after just two days at home, she checked her temperature one night and had a fever of 101.6F. We followed the post-infusion protocols which stipulated going to the ED for a temperature that high, thinking they would give her antibiotics and send her home. Unfortunately, the doctors couldn’t find a source of infection so she was admitted once again and stayed three more days, getting a platelet transfer to help her get through the second infusion.
The third day in the hospital was because Leslie tested positive for COVID-19. Of course, so did I. Neither of us had any of the traditional symptoms, except a bad cough. And this is when we were moving into more long-term quarters.
Because of the side effects from the first infusion, we were afraid of being too far from the hospital. So we opted against going to a friend’s condo in western Florida because it’s a 90-minute drive from the Cleveland Clinic campus in Weston. Instead, we got an AirBnB just 30 minutes from the hospital in a quiet neighborhood north of Fort Lauderdale.
The second infusion was scheduled for July 27. Based on what happened after the first, her oncologist has revised the plan. Starting today (August 3), she will get one-third of a normal dose once a week for three weeks. Only one hour in the chair as opposed to three. So the schedule now is three weeks of treatment on Thursdays followed by one week off to let her body recover. Then three more weeks for Dose #3 and so on. Her doctor believes that will help prevent a recurrence of the side effects. The downside is we will most likely be here in Florida through Christmas.
Despite all that, Leslie is feeling positive and is focused on finishing the course of treatment to prevent cancer from coming back. She believes God has her in the palm of His hand. She’s getting stronger every day and is delighted to have a nice pool in the back yard of our temporary home to do some water exercises. She’s also getting regular visits from home health nurses and a physical therapist.
We’re looking forward to getting back home to México as soon as possible.